Hemophilia_Alex

Hemophila By Neel Alex

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Hemophilia

Symptoms

Excessive bruising Joint roughness Spontaneous bleeding Nonstop bleeding after cuts, scrapes, and things such as getting teeth pulled. Random nosebleeds

Inheritance

X-linked recessive X-gene from mother X/Y from father

Notable people with it

Abraham Lincoln Tsarevitch Alexei Romanov Russian Royal Family Queen Victoria Mother Theresa Genghis Khan

How it occurs

Random gene mutations in the X-chromosome can cause the gene to become a gene for hemophilia. Roughly 30% of hemophilia cases are caused by random gene mutations. The last 70% of the cases are inherited from people who got hemophilia from either one of the two causes.

From the Handbook of Alexei Romanov Russian Tsarevitch

Translated by Neel Alex

Alexei Romanov

March 8, 1910

 I am Alexei Romanov, heir to the Russian престол. (can't be translated roughly throne; kingdom; monarchy?) I have decided to take up this journal, in order to explain my young life. I hope the Russian люди (people; educated people; kingdom?) will appreciate my work. I will write in my journal to show people my thoughts or ideas.

August 20, 1910

I am sorry, I temporarily forgot about my journal. Now, lying in my quarters, I saw it and decided to make an entry. I was outside toady, looking at the sky, when I saw a spider. I jumped away and tried to go back to the жилье (house; mansion;dwelling?). I got there and rested, only then did I notice my shirt was soaked in blood. I must have given myself a small cut in the woods but for some reason it did not stop bleeding.

January 13, 1911

My parents told me about my hemophilia today. They decided it would be necessary after the incedent today. I must have cut my hand during a writing assignment, and it didn't stop bleeding. Eventually, bandaged and pressed, it stopped bleeding. My parents decided it would be time to tell me of my disease, and I was so devastated by the news that I ran to my room. After hours, I decided to make a journal entry. I am now fully aware I may not live to adulthood.

April 29, 1912

I played the funniest joke on a dinner party guest today. I stole the guest's shoe, and presented it to Father as a token of honor. He said I should put it pack, so I did. Though, not before putting a large overripe strawberry in the shoe. I gave the shoe back to the guest and she put it on without even looking in it. She screamed so loudly that I though Father would strip me of my priviliges for months. However all he did was laugh. However, mother said I cannot attend formal dinners for the next few weeks. It doesn't really matter as they are already so boring, all I wanted to do was spice it up.

November 7, 1912

My leg is feeling funny. I wonder if it has to do with my disease. I had just been playing outside with my sisters, nothing too rough, as my bodyguards will not allow it. I slipped and fell however, and my leg started swelling. My guards said that that was enough and that we should return. However, now my leg has started to swell and is begining to look discolored. We called the doctor and he says it is nothing that he knew of, so we will be calling in another one. It looks kind of like the bruises my sisters occasionally give other.

<span style="font-family: 'Palatino Linotype','Book Antiqua',Palatino,serif; font-size: 150%;">The new doctor came later this night and he pronounced it internal bleeding. apparently my leg is bleeding from the indise. Though it just looks blackish, it is actually my blood swishing around. If it does not stop bleeding soon, I may have to step down my my station as наследник (heir; to-be leader; royal son).

<span style="font-family: 'Palatino Linotype','Book Antiqua',Palatino,serif; font-size: 150%;"> April 3, 1914

<span style="font-family: 'Palatino Linotype','Book Antiqua',Palatino,serif; font-size: 150%;"> I am sorry for neglecting my journal so much. I have forgotten about it in the time that has passed. The reason I begin to write in it again is because of what my doctor told me. He decided it was time for me to know about my disease. It is apparently a disease I got from my mother, who got it from Queen Victoria of England. It is caused by the blood not being able to clot. This is why I cannot do things. However, I want to enjoy my life, even if I do not live long. That is why I will ask my Father to let me join him in his military affairs. There are talks of a rebellion occurring, so I will help. I may not write in my journal for a time due to my new state of living, but I will try to write in it whenever I can.

<span style="font-family: 'Palatino Linotype','Book Antiqua',Palatino,serif; font-size: 150%;"> March 4, 1916

<span style="font-family: 'Palatino Linotype','Book Antiqua',Palatino,serif; font-size: 150%;"> Today Father has given me the title of Lance Corporal. I am very proud of this. I hope that I can live up to Father's expectations. Some of the people of my <span style="font-family: 'Palatino Linotype','Book Antiqua',Palatino,serif;"> страна (country; nation; union?) are considering revolt against the ruling family, us. But I am certain that the common sense of the people will prevail. I have been trying to help the soldiers, but I could not go into battle with my family and disease, so I instead chose to help the soldiers from here. I assist the medical workers, and I comfort those who have suffered losses. I do sincerely hope that I am being of use to the army, and that I am not becoming dead weight. Though many have been injured I am certain we will win. I am growing tired of the people trying to treat me as if I were <span style="font-family: 'Palatino Linotype','Book Antiqua',Palatino,serif;"> страна (royal; noble; honoured ?) though I am. They give me privileges above that of one of my rank in the military. I wish they would treat me as I am. <span style="font-family: 'Palatino Linotype','Book Antiqua',Palatino,serif;"> <span style="font-family: 'Palatino Linotype','Book Antiqua',Palatino,serif;"> <span style="font-family: 'Palatino Linotype','Book Antiqua',Palatino,serif;"> <span style="font-family: 'Palatino Linotype','Book Antiqua',Palatino,serif;"> <span style="font-family: 'Palatino Linotype','Book Antiqua',Palatino,serif;"> February 27, 1917 <span style="font-family: 'Palatino Linotype','Book Antiqua',Palatino,serif;"> <span style="font-family: 'Palatino Linotype','Book Antiqua',Palatino,serif;"> <span style="font-family: 'Palatino Linotype','Book Antiqua',Palatino,serif;"> The rebellion of the people has gone on more than I thought. The people are now insisting that Father abdicate, and that a democratic government be put in place. I have personally advised Father to follow the people's wishes and abdicate, but I think he needs a bit more convincing. Though I have considered myself the carrier of the people's wishes, I think the people grow unreasonable in their anger, and I hope they decide to pardon us. I fear for my life and I hope we will survive this revolution. <span style="font-family: 'Palatino Linotype','Book Antiqua',Palatino,serif;"> <span style="font-family: 'Palatino Linotype','Book Antiqua',Palatino,serif;"> <span style="font-family: 'Palatino Linotype','Book Antiqua',Palatino,serif;"> <span style="font-family: 'Palatino Linotype','Book Antiqua',Palatino,serif;"> March 9, 1917 <span style="font-family: 'Palatino Linotype','Book Antiqua',Palatino,serif;"> <span style="font-family: 'Palatino Linotype','Book Antiqua',Palatino,serif;"> <span style="font-family: 'Palatino Linotype','Book Antiqua',Palatino,serif;"> Father has officially abdicated the throne, and he has decided to return to his house. We [the royal family] have been placed under house arrest by the new government. I think that eventually we will be allowed to live a life amongst the people in the new Soviet Republic, as they are starting to call it. I am getting bored under the house arrest and unless I think of something to do soon, I may have to resort to mischief. A lot of my personal belongings have been taken, so I will write in my journal more often. <span style="font-family: 'Palatino Linotype','Book Antiqua',Palatino,serif;"> <span style="font-family: 'Palatino Linotype','Book Antiqua',Palatino,serif;"> <span style="font-family: 'Palatino Linotype','Book Antiqua',Palatino,serif;"> July 17, 1917 <span style="font-family: 'Palatino Linotype','Book Antiqua',Palatino,serif;"> <span style="font-family: 'Palatino Linotype','Book Antiqua',Palatino,serif;"> <span style="font-family: 'Palatino Linotype','Book Antiqua',Palatino,serif;"> We have been told that we will not be allowed to live amongst the people for the fear of inciting rebellion. We will have to live the rest of our life under supervision. This really is a disappointment, and I hope that I can somehow convince them that society will be able to survive with us and that we stand a chance of reintegration into society. However I have heard news of a rebellion against the new government. If we were to be released, that might fuel the rebellion resulting in problems for the new government. However for them to kill us would result in martyrdom for us, making the rebellion harder to crush. They chose the most logical course of action and I do not blame them. <span style="font-family: 'Palatino Linotype','Book Antiqua',Palatino,serif;"> <span style="font-family: 'Palatino Linotype','Book Antiqua',Palatino,serif;"> We are supposed to be moved, today and we have been requested to go down into the cellar before that. I welcome the thought of a change of scenery. Mother has requested to take a couple of chairs to the cellar, so Father and Mother may sit. I have this strange ominous feeling but I am sure it is nothing. Now I have to go down to the cellar. I will write another report on our new surroundings after the move. <span style="font-family: 'Palatino Linotype','Book Antiqua',Palatino,serif;"> <span style="font-family: 'Palatino Linotype','Book Antiqua',Palatino,serif;"> <span style="color: #7a0000; font-family: 'Palatino Linotype','Book Antiqua',Palatino,serif; font-size: 200%; line-height: 29px;"><span style="font-family: 'Palatino Linotype','Book Antiqua',Palatino,serif;">END JOURNAL  <span style="color: #7a0000; font-family: 'Palatino Linotype','Book Antiqua',Palatino,serif; font-size: 200%; line-height: 29px;"><span style="font-family: 'Palatino Linotype','Book Antiqua',Palatino,serif;"> <span style="color: #7a0000; font-family: 'Palatino Linotype','Book Antiqua',Palatino,serif; font-size: 200%; line-height: 29px;"><span style="font-family: 'Palatino Linotype','Book Antiqua',Palatino,serif;"> <span style="font-family: 'Times New Roman',Times,serif;"> Note: The Romanov Family was assassinated in the cellar of the house mentioned, executed by firing squad. They were executed by order of the new government due to the rebellion as an example. Soon after, The U.S.S.R. was formed.